Refining interventions through formative research: a focus on ethical considerations in a family-based home-based counselling and testing (fbct) intervention in KwaZulu-Natal

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dc.contributor.authorKnight, Lucia
dc.date.accessioned2022-12-05T10:38:41Z
dc.date.available2022-12-05T10:38:41Z
dc.date.issued2020
dc.description.abstractConducting formative research is a scientific, ethical, and community engagement imperative. This article describes how formative research refined ethical processes for a family-based home-based counseling and testing (FBCT) intervention in KwaZulu-Natal. In-depth interviews were conducted to explore community (n = 20) and key stakeholders’ (n = 20) needs, concerns, and perspectives on the FBCT model, including ethical issues for working with children and families. Data were analyzed thematically using NVivo software. Four key ethical considerations emerged, namely, respect for community norms and cultural practices; confidentiality, privacy, and forced disclosure; identifying potential risks and benefits; and voluntariness and capacity to consent. Data were used to refine the intervention and address participants’ concerns by engaging the community, providing ethics training for intervention staff, and incorporating independent consent mechanisms for adolescent HIV testing that supported opportunities for family-based testing and disclosure.en_US
dc.identifier.citationEssack, Zaynab & Ngcobo, Nkosinathi & Gillespie, Natasha & Knight, Lucia & Rochat, Tamsen & Mkhize, Mirriam & Van Rooyen, Heidi. (2019). Refining Interventions Through Formative Research: A Focus on Ethical Considerations in a Family-Based Home-Based Counseling and Testing (FBCT) Intervention in KwaZulu-Natal. Journal of Empirical Research on Human Research Ethics. 15. 155626461988521. 10.1177/1556264619885214.en_US
dc.identifier.urihttps://doi.org/10.1177/15562646198852
dc.identifier.urihttp://hdl.handle.net/10566/8187
dc.language.isoen_USen_US
dc.publisherJournal of Empirical Research on Human Research Ethicsen_US
dc.subjectfamily-based counseling and testing,en_US
dc.subjectinformed consenten_US
dc.subjectHIV counseling and testingen_US
dc.subjectdisclosureen_US
dc.subjectrisks and benefitsen_US
dc.titleRefining interventions through formative research: a focus on ethical considerations in a family-based home-based counselling and testing (fbct) intervention in KwaZulu-Natalen_US
dc.typeArticleen_US

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