CranDentSA registry: Advancing orodental and craniofacial anomalies research in South Africa
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Date
2024
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Volume Title
Publisher
University of the Western Cape
Abstract
“A dental anomalies registry is crucial for advancing the field by providing essential epidemiological data and guiding future research, diagnosis, and treatment of dental and other developmental disorders.” Dental anomalies are often associated with rare diseases and reflect pathological events intrinsic to tooth development or secondary systemic dysregulation. Dental anomalies can aid in the diagnosis of rare diseases and may share a common aetiopathogenesis to rare diseases. The lack of data available in South Africa hampers comprehensive understanding and effective management. The CranDentSA Registry aims to establish a patient-centric database to document and monitor orodental and craniofacial anomalies in South Africa. The registry will aid in understanding the epidemiology, enhance phenotype delineation, assess impact, evaluate the management of these anomalies, enhance patient care, facilitate interdisciplinary collaboration, and contribute to global research efforts.
Description
Keywords
CranDentSA Registry, Craniofacial anomalies, Dental anomalies, Rare diseases, Aetiopathogenesis