“We can’t handle things we don’t know about”: perceived neurorehabilitation challenges for Malawian paediatric cerebral malaria survivors
| dc.contributor.author | Mboma, Sebastian M. | |
| dc.contributor.author | Boubour, Alexandra | |
| dc.contributor.author | Mohamed, Suraya | |
| dc.date.accessioned | 2021-01-04T12:12:16Z | |
| dc.date.available | 2021-01-04T12:12:16Z | |
| dc.date.issued | 2020 | |
| dc.description.abstract | Background: We sought to identify perceptions of neurorehabilitation challenges for paediatric cerebral malaria (CM) survivors post-hospital discharge at Queen Elizabeth Central Hospital (QECH) in Blantyre, Malawi. Methods: An exploratory approach was used to qualitatively investigate the perceived neurorehabilitation challenges for paediatric CM survivors. Data were collected through semi-structured in-depth interviews (IDIs) and focus group discussions (FGDs). Eighteen data-gathering sessions were conducted with 38 total participants, including 3 FGDs with 23 primary caregivers, 11 IDIs with healthcare workers at QECH, and 4 IDIs with community-based rehabilitation workers (CRWs). Results: FGDs revealed that caregivers lack important knowledge about CM and fear recurrence of CM in their children. Post-CM children and families experience substantial stigma and sociocultural barriers to integrating into their community and accessing neurorehabilitative care. | en_US |
| dc.identifier.citation | Mboma, S. M. et al. (2020). “We can’t handle things we don’t know about”: perceived neurorehabilitation challenges for Malawian paediatric cerebral malaria survivors. BMC Pediatrics, 20(1),503 | en_US |
| dc.identifier.issn | 1471-2431 | |
| dc.identifier.uri | 10.1186/s12887-020-02405-1 | |
| dc.identifier.uri | http://hdl.handle.net/10566/5538 | |
| dc.language.iso | en | en_US |
| dc.publisher | Springer Nature | en_US |
| dc.subject | Neurorehabilitation | en_US |
| dc.subject | Paediatric | en_US |
| dc.subject | Cerebral malaria | en_US |
| dc.subject | Qualitative | en_US |
| dc.subject | Malawi | en_US |
| dc.title | “We can’t handle things we don’t know about”: perceived neurorehabilitation challenges for Malawian paediatric cerebral malaria survivors | en_US |
| dc.type | Article | en_US |