Browsing by Author "Bedeker, Anja"

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    Understanding biobanking : An assessment of the public engagement speaking book intervention Biobanking and Me
    (South African Medical Association, 2019) Bedeker, Anja; Anderson, Dominique; Lose, Thoba
    Meaningful engagement with donors of biological samples intended for human-sample biobanking increases knowledge, and allows donors to make informed decisions. Informed donors provide a platform for public awareness, allowing communities to understand the impact of research, and may even encourage more people to donate biological samples. The Biobanking and Me speaking book was written to explain relevant concepts, including biobanks, genetic research and participant rights, to persons from any educational level or background. Two bilingual versions of the speaking book (English-Afrikaans and English-isiXhosa) were produced, and the impact of the speaking book was assessed.