Understanding biobanking : An assessment of the public engagement speaking book intervention Biobanking and Me
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Date
2019
Journal Title
Journal ISSN
Volume Title
Publisher
South African Medical Association
Abstract
Meaningful engagement with donors of biological samples intended for human-sample biobanking increases knowledge, and allows donors to make informed decisions. Informed donors provide a platform for public awareness, allowing communities to understand the impact of research, and may even encourage more people to donate biological samples. The Biobanking and Me speaking book was written to explain relevant concepts, including biobanks, genetic research and participant rights, to persons from any educational level or background. Two bilingual versions of the speaking book (English-Afrikaans and English-isiXhosa) were produced, and the impact of the speaking book was assessed.
Description
Keywords
Biobanking, Higher education, Diversity, South Africa
Citation
Bedeker, A. et al. (2019). Understanding biobanking : An assessment of the public engagement speaking book intervention Biobanking and Me. South African Journal of Bioethics and Law, 12(2), 87-92. https://doi.org/10.7196/SAJBL.2019.v12i2.691