A case study of the social coping experiences of an adolescent with Arthrogryposis Multitplex Congenita

Abstract

Arthrogryposis multiplex congenita or A.M.C. is a disorder, which is characterized by multiple contractures of the joints. The disorder presents with varied grades of severity. Despite the physical deformities, intelligence is intact. The aim of this research was to explore the social coping experiences of an adolescent living with Arthrogryposis. This research was a qualitative study. The research design was a case study. Phenomenology was the theoretical framework used. The data collection was done by using one sample, an adolescent living with Arthrogryposis who shared her social coping experiences. Thematic analysis was used to analyse the data. This research was a personal journey for the researcher because he too lives with Arthrogryposis. Objectivity was maintained. After securing the participant's consent, I emphasized anonymity, confidentiality and the voluntary nature of the study to her. The significance of this research was to develop an understanding of and support for people living with Arthrogryposis and for the disabled in general. The major issues, which arose from this research was the role of transport, social relationships, communication with the non-disabled, the role of the community, making friends, the role of the parent in socialization and others' perceptions of Arthrogryposis. There were limitations to the study, which included interviews, which were partially inaudible, the absence of the participants' father, the shyness of the participant, the social inexperience of the participant, lack of other participants and complications Mwith transportation