‘We create our own small world’: daily realities of mothers of disabled children in a South African urban settlement

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dc.contributor.authorvan der Mark, Elise J.
dc.contributor.authorConradie, Ina
dc.contributor.authorDedding, Christine W. M.
dc.contributor.authorBroerse, Jacqueline E. W.
dc.date.accessioned2019-07-09T09:50:00Z
dc.date.available2019-07-09T09:50:00Z
dc.date.issued2019
dc.description.abstractParents of disabled children face many challenges. Understanding their experiences and acknowledging contextual influences is vital in developing intervention strategies that fit their daily realities. However, studies of parents from a resource-poor context are particularly scarce. This ethnographic study with 30 mothers from a South African township (15 semi-structured interviews and 24 participatory group sessions) unearths how mothers care on their own, in an isolated manner. The complexity of low living standards, being poorly supported by care structures and networks, believing in being the best carer, distrusting others due to a violent context, and resigning towards life shape and are shaped by this solitary care responsibility. For disability inclusive development to be successful, programmes should support mothers by sharing the care responsibility taking into account the isolated nature of mothers’ lives and the impact of poverty. This can provide room for these mothers to increase the well-being of themselves and their children.en_US
dc.identifier.citationElise J. van der Mark, Ina Conradie, Christine W. M. Dedding & Jacqueline E. W. Broerse (2019) ‘We create our own small world’: daily realities of mothers of disabled children in a South African urban settlement, Disability & Society, 34:1, 95-120, DOI: 10.1080/09687599.2018.1511415en_US
dc.identifier.issn1360-0508
dc.identifier.urihttps://doi.org/10.1080/09687599.2018.1511415
dc.identifier.urihttp://hdl.handle.net/10566/4713
dc.language.isoenen_US
dc.publisherRoutledgeen_US
dc.subjectDisabled childrenen_US
dc.subjectMothersen_US
dc.subjectCareen_US
dc.subjectUrban pooren_US
dc.subjectPovertyen_US
dc.title‘We create our own small world’: daily realities of mothers of disabled children in a South African urban settlementen_US
dc.typeArticleen_US

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