Mothers’ experiences of disclosure to their children of their HIV-positive status at a local hospital in the Western Cape area: A Social work perspective
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Date
2020
Authors
Journal Title
Journal ISSN
Volume Title
Publisher
University of the Western Cape
Abstract
Antiretroviral therapy (ART) is been researched and reported available worldwide and it has
been reported to work; children on treatment live longer periods of life. Tygerberg Hospital
(TBH) is one of the well-known academic healthcare institutions located in Parow, Western
Cape, South Africa with several units including the paediatric unit. This research unit situated
at TBH is focused on pharmaceutical trials and consists of approximately 500 children actively
participating in the study, as well as approximately 300 pregnant mothers. This study aimed at
exploring the experiences of mothers who have disclosed to children about their HIV-positive
status, as well as exploring interventions to assist disclosure. The ethics of care is the theoretical
framework utilised in the study. The population was mothers whose children are HIV-positive
and the purposive sample included approximately four social workers and ten mothers who
have been cognisant about disclosing to their children their HIV status. Key informants
included social workers who dealt with these cases interviewed to triangulate the data. The
interviews were conducted at the social worker's office located at TBH paediatrics unit. The
study is qualitative with explorative and descriptive research design. Data was collected
through in-depth semi-structured interviews transcribed verbatim. Data analysis was utilised to
develop themes and sub-themes on the topic. Ethics considerations were adhered to. The
findings highlighted challenges that mothers encountered during the process of disclosing,
particularly a sense of shame and fear how their children and their communities will respond.
There was a mixed response to how mothers felt about support from social workers and other
care workers at the hospital, including the local clinics and there was a strong belief that
training should be secured so that mothers can be empowered to do HIV disclosure to their
HIV positive children.
Description
Magister Artium (Social Work) - MA(SW)
Keywords
HIV, Disclosure, Mothers, Children, Social work, Care, Family, Support